June 22, 2015

Crowd Funding for Charlie's New Ride


We've just launched a crowd funding campaign for my Charlie's handicapped accessible van!
Please watch the video below and check out all of the details HERE.


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A LITTLE ABOUT CHARLIE: 

Charlie Greenman was born on August 4, 2010. It was soon discovered that he had suffered two strokes in utero. He has since been diagnosed with Cerebral Palsy and Epilepsy - all complications due to stroke.

When Charlie came into the world, doctors told us that Charlie would probably never walk or talk. As of this summer, Charlie is doing both and showing no signs of slowing down. This is due, in part, to the excellent physical and occupation therapy Charlie receives.





THE SITUATION: 

However, a new conundrum has come up for our family. Charlie's efforts to be mobile require all sorts of assistive equipment. We need space for both his wheelchair and his gait-trainer when we travel.

Also, Charlie has just hit 50 pounds and is in the 90th percentile for height. My husband, Jack and I carry him everywhere, lifting him in and out of wheelchairs, gait-trainer, grocery carts, chairs and cribs. But the most difficult transfers take place when we need to get Charlie through the car door and into his car seat.


THE SOLUTION: 

A handicapped accessible van for Charlie! We have just purchased a used Toyota Sienna from a neighborhood family. There is plenty of room for his equipment, but the best part is that it's already adapted for handicapped accessibilty. A new, fully adapted van, would have cost in excess of $60,000. We feel very fortunate to have found a used one in great condition for $26,000. 

But now we're in a bind - one which so many families of special needs children find themselves. We simply do not have the financial resources to pay for both Charlie's life changing therapies and also cover the necessary cost of his handicapped accessible van.






 THE GOAL: 

We're hoping to raise $26,000 for Charlie's new ride. Every dollar we receive goes directly towards paying down our car loan and allows us to continue our monthly payments towards Charlie's many therapy treatments.

THANK YOU to everyone for your past, present and ongoing support of our son, Charlie! Our family could not do it without you. And a special thank you to Kenna's Kids for their amazing support for Charlie over the past three years.


Visit our Go Fund Me site to donate and share our story on social media.




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Full disclosure: Go Fund Me takes 8% off the top of your donations, 
while Paypal only takes 3% in fees. Charlie's Paypal donation button is below
if you prefer that to Go Fund Me.

Thank you for all your love and support!


June 11, 2015

Talking the Talk

Charlie's verbal skills have been severely delayed due to his perinatal stroke. And while we know that he understands more than he can express, this verbal delay can sometimes prevent Charlie from interacting with people outside of his immediate circle. As of September 2014, Charlie could say between 10 and 15 words. As of June 2015, that number has risen to over 80. Needless to say, this year of school and therapy was instrumental for Charlie Greenman's speech.

Just for fun, we've included a list of all Charlie's words to date. Most of these words are not intelligible to the average listener, but Charlie's teachers, therapists and family can see that he is using these words with consistency with a growing level of accuracy. Keep up the good work Charlie!




Charlie's Word List June 2015:

Charlie
Greenman
Walker
Mommy 
Daddy
hi
hello
How are you?
good
great
eat
yogurt
oatmeal
cheese
muffin
apple
water
bowl
table
chair
bed
night night
pillow
light
on
off
walk
up
down
bye bye
be back
name
my
I
want
Griffin
doggie
cat
sheep
cow
baby
outside
swing
wind
rain
thunder
run
friend
white
yellow
red
purple
orange
green
happy
grumpy
hungry
bear
house
home
car
bus
school
teacher
more
bite
wiggle
signing time
street
Elmo
cookie
bonk
hat
glasses
ear
eye
chin
cheek
hair
head
shoulder
knee
toe
quiet
sleep
help
nice
sun
moon
star
sky
rainbow
tree
bug
grass
day
show
word
shoe
sock
boot
pants
shirt
shorts
bird
creep
clap
Leah
Rachel
Michelle
Alexis
Katy
Jessica
kitchen
room
bath
go 
delicious
me
tickle
crunchy
please
thank you
all done
no
yes / yeah
twist
spin
sing
twinkle
round
wheel
shut
where
what





January 27, 2015

Registration is Open for the 2015 Kenna Cup

The 8th Annual Kenna Cup is here!

Friday, June 26th 2015
Saturday, June 27th 2015

at the Golf Club at Frisco Lakes
7170 Anthem Dr, Frisco, TX

The format is an 18 hole 2-man scramble.

$125 per player / $250 per team
-includes golf, range balls, goodie bag, tournament t-shirt,
multiple hole-in-one contests, 1 mulligan, food & drinks on the course
and BBQ from Randy White's after the round!

Register HERE






Kenna's Kids is a fantastic nonprofit organization that reaches out to individual families with children experiencing life's medical challenges at a young age. Charlie Greenman was a beneficiary in 2012 and Kenna's Kids continues to be a big part of his life. Please support this organization. There are lots of ways to participate. Visit their website for more information!




January 16, 2015

Last Semester of Pre-School

Hi Charlie fans, its been a while since I last posted, but I thought I'd check in with an update about our teeny-little-super-guy. Charlie is just starting his last semester of preschool. He loves riding the bus, seeing his friends, working with his therapists and playing games with his teacher. He still adores music and all manner of books.

The biggest growth for Charlie this fall and winter has been in the verbal category. He is attempting any and all words. His mimicry is getting a lot more accurate and we can tell that parts of his throat and tongue are loosening up. When Charlie first arrived, his brain MRIs showed extensive damage to his language center and our doctors gave us grim forecasts as to his future ability to comprehend language and make words. But in the past few months, Charlie has shown us all that he is ready to talk talk talk. Besides, he has to keep up with his chatty brother.

In December, Charlie had two seizures, which were both small and contained. A recent visit with our neurologist helped us to understand that as Charlie's brain changes and adapts, especially when he's in the throes of rapid skill acquisition, seizures are normal. Still, we're going to have another MRI in the spring to take a look at Charlie's brain again. We're mostly interested in seeing how the scar tissue from the stroke site has changed as his brain has grown.

As always, thank you so much for all of your support and love. We couldn't do it without you! We have some exciting developments in the coming months; we'll be welcoming a therapy dog into our home and we'll also be buying a used wheelchair accessible van for Charlie! So we'll keep you updated as we know more!




October 17, 2014

Preschool & Charlie's Gait Trainer

Charlie has been enjoying his second year in preschool. His teachers and therapists are all so heart-centered, so educated, so enthusiastic - a perfect match of Charlie Fighting Bear. One of the physical goals this year is to get Charlie comfortable in the gait trainer. We would like for him to be mobile by the time he starts kindergarten. This will aid in his ability to participate, play and interact with the children in class and the world around him. It also allows him some autonomy and choice making.

Here is a video of Charlie in his gait trainer. Only 6 weeks into the semester and he's already reaching his physical goals for the school year!



June 1, 2014

Charlie's Upsee

Charlie received his Upsee harness last week! Sarah, Jack and Charlie have spent the past days getting to know their new equipment and learning how to move together.

Like most new adaptive equipment, Charlie was apprehensive at first. His initial try was uncomfortable and ended in tears with lots of bucking and kicking and hanging in the harness. The second try was more successful resulting in a two minute walk around the house. By the third try, Charlie was ready to head outside.

This morning was Charlie's fifth day in the Upsee. He and his dad, Jack, took a spin around the neighborhood and through a nearby parking lot. Charlie is becoming more confident and eager the more he uses the Upsee. After his first few attempts, it was clear that Charlie didn't need the shoes that came with the package. Charlie is already able to move his feet and bear weight without assistance. Charlie's issue is one of balance and stamina, which the Upsee addresses beautifully.

And as for Charlie's walking partners, Jack and Sarah are able to stand up strait and bear their own weight while still assisting Charlie. No more back aches and pulled muscles from bending over to hold all of Charlie's weight.

Here are some photos from this morning's walk:















Learn more about the Upsee HERE.

May 2, 2014

May is Pediatric Stroke Awareness Month

Hi dear readers. As most of you know, Charlie had a stroke before he was born. About a week before I delivered, Charlie had a massive hemorrhage on the right side of his brain. The stroke affected his motor skills, cognitive and language development. He has since been diagnosed with Cerebral Palsy, Hemiplegia and Epilepsy.

But we were lucky. Charlie presented signs of his stroke immediately and we were able to locate the bleed and begin the hard work of helping him attempt some kind of recovery. Many children who have strokes at such a young age go undiagnosed for months, even years. Why is this? The answer is simple. People don't think that babies and little children can have strokes. The fact is that 1 in 4,000 children will suffer from a stroke.

So, in honor of Pediatric Stroke Awareness Month, 
Charlie would like to remind you that...




Lear more about pediatric stroke by visiting the Children's Hemiplegia and Stroke Association.