May 30, 2013

One Foot in Front of the Other

For those of you who have been following Charlie's blog, you know that he has Cerebral Palsy related to stroke. He can't walk or crawl.  Last fall he began bearing weight through his legs and feet with the help of orthotic braces and the support of an adult. But just recently, he began shifting his body weight onto one foot and picking up his other foot to mimic a stepping action. This week, he completed the action and was even able to get his stroke affected leg to participate. Here he is putting one foot in front of the other and bearing weight through his hips, legs, knees and feet. His mother, Sarah, is holding him by his pelvis to keep him upright - the rest is all him!

May 18, 2013

Charlie's Spring Update

Hello Charlie Fans!  Charlie has just finished up his spring therapies and is now spending May and June in Utah with his family. Every year the Greenmans travel to Cedar City where Jack (Charlie's Dad) works at the Utah Shakespeare Festival. While away, Charlie will spend time in the local pool doing some aqua therapy, but all other appointments and meetings fade away for a time. Charlie gets to sit back and be a kid for a while!

The big news is that Charlie is in the process of enrolling for preschool!  It's hard to believe it, but he'll be three years old in August!  In April, Charlie had his first evaluation for Texas' Preschool Programs for Children with Disabilities (PPCD). This meeting was followed by an Admission, Review and Dismissal (ARD) where therapists, teachers and parents annually meet to create an education plan for the student.  Charlie will start preschool in the fall where he will follow normal preschool curriculum and also receive speech therapy and some physical therapy.  He will also continue his occupational therapies at Our Children's House Baylor outside of school.

Charlie had a neurology appointment in April. His doctor assessed that Charlie has probably been having sub-clinical seizures (undetectable by just looking at him) which are slightly dampening his cognitive function. We will be increasing the dose of his medication to combat these sub-clinical seizures and of course, the doctor will be closely monitoring Charlie as we find the right balance.

Generally, Charlie is doing very well. He is saying "Mama" with frequency and accuracy. He is also learning new signs and responding appropriately to yes / no questions.  It is clear that he understands far more than he can speak. His wheel chair continues to be a God-send and helps him stay connected and mobile. He's very social, always making eye contact and engaging with vocal sounds, laughter and hugs.

Thank you for ALL your amazing support!
Sarah Greenman

May 1, 2013

May is Pediatric Stroke Awareness Month

May is Pediatric Stroke Awareness month. 1 in 2,800 infants will have a stroke before they are one month old, many before they are out of the womb. 1 in 6 will not survive the stroke. Our little survivor will be three in August. He loves to laugh, play games, ask for more food, snuggle, watch Mr. Rogers, ride around in his zippy wheel chair and did we mention, snuggle? Spread the word - kids have strokes too!