November 13, 2012

Roll, Charlie, Roll

Hello Charlie Fans,

Charlie is having a big moment of transition this month. His growth has been off the charts, which is wonderful for his overall health, but means he can no longer use a baby stroller to get around. Our team of therapists have therefore decided to order a wheelchair for Charlie.  In the meantime, we're borrowing one from Our Children's House at Baylor to give it a whirl before making final decisions about style and brand. We picked up the chair today and right off the bat, Charlie reached out and tried to push the wheel.  It was as if he knew exactly what to do. This obviously bodes well for his mobility and future success with the chair.

In other news, Charlie's lingual frenectomy (surgery last month) is healing beautifully and we're already seeing improvement with his speech actions and lateral tongue movement. And this Friday marks our last week in the STEPS feeding therapy program at the Callier Center. We have been very happy with his progress during the course of this program.

And finally, Charlie met last week with his Neurologist who increased the dosage of Trileptal (anti-seizure medication) to accommodate Charlie's rapid weight gain. Our doctor was very pleased with Charlie's progress, especially his advances with sign language, vocal mimicry and level of social engagement. Generally, Charlie is doing very well right now. Thank you so much for all of your well wishing - we so appreciate it.

All my love,

Charlie tries his chair for the first time and reaches out to push the wheel.

Charlie reaching with his left (affected side) to touch the wheel!

Brother Walker gives Charlie a spin around the therapy center.

Walker decides to push Charlie out of the room...

...and down the hall...

...and out to the car.

Once home, Walker wheeled Charlie into the back room and read him a story.


  1. Such wonderful pictures! Go, Charlie, go!

  2. Walker--what a dear.
    Way to go, Charlie!

  3. Walker--what a dear.
    Way to go, Charlie!

  4. Huge transitions! Walker is certainly 'on the job' - Love the connection! Charlie's curiosity will get him self propelled soon! Watch out world, Charlie (and Walker) have the wheel!!!

  5. Sarah,

    Both of your children are gorgeous and inspiring and wow. I am so inspired and have so much deep admiration for you and your family. You are an amazing matriarch, and giving us the gift of this blog keeps many of us closer to you than you may realize (in a good way).
    What an amazing child, and what a beautiful brother.


  6. Have Charlie on my prayer list. (you are invited to follow my blog)

  7. Hey, just found your blog - It's so great! Those pictures of Walker wheeling Charlie around are truly precious. What a sweet older brother! Looks like The world is Charlie's oyster now. Good luck to you and your family, and if you ever need any cerebral palsy resources, definitely feel free to check out Cerebral Palsy Family Network. I've found it to be a great source of help and community for all CP issues. Happy Holidays!